Welcome....
Welcome to 'Helping Kids Grow', a Nebraska chapter of Sophia's Cure Foundation. Our daughter, Ella, was diagnosed in January 2011 with SMA, just three days after her first birthday. She has inspired us to want to make a difference. We strive to raise awareness about Spinal Muscular Atrophy (SMA), to provide support for local Nebraska and Iowa familes, and to raise funds to cure SMA.
Check out our site to learn more about our story, what SMA is, and how we are raising money to find a cure!!
Read more about Ella's journey at www.caringbridge.org/visit/ellapeters
Check out our site to learn more about our story, what SMA is, and how we are raising money to find a cure!!
Read more about Ella's journey at www.caringbridge.org/visit/ellapeters
Donate today.....
Interested in making a donation to SMA Reasearch?? Visit our friends at www.sophiascure.org and make a difference for the kids and families affected by SMA! We appreciate your support.
Sophia’s Cure Foundation is a non-profit 501(c)3 public charity created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education, and support.
Sophia’s Cure Foundation is a non-profit 501(c)3 public charity created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education, and support.
"Night Out for a Cure", reserve your tickets today!!!
John Edwards' Salon and the Peters' family invite you to join us for a "Night Out for a Cure". This event is to benefit SMA Research, specifically the Gene Replacement Therapy Program at Ohio State University, headed by Dr. Brian Kaspar. SMA is a devastating disease and these children and families need a cure! This program has made huge advancements in SMA Research and will hopefully be in human clinical trials by the end of 2012. But, we need to make sure that there is proper funding! Check out the "Night Out for a Cure" page for more details.
Funds to go to Gene Replacement Therapy Program, promising new data!
Any funds raised will go towards getting this program into human clinical trials. This could be the CURE for these kids!
Systemic Gene Delivery in Large Species for Targeting Spinal Cord, Brain, and Peripheral Tissues for Pediatric Disorders
www.nature.com/mt/journal/vaop/ncurrent/full/mt2011157a.html
Systemic Gene Delivery in Large Species for Targeting Spinal Cord, Brain, and Peripheral Tissues for Pediatric Disorders
www.nature.com/mt/journal/vaop/ncurrent/full/mt2011157a.html
Thank you for your support !!!!
Our first big fundraiser for SMA Research, 'Lace up for NMD' was on August 13th.It was a walk/run/roll to benefit the neuromuscular diseases Multiple Sclerosis (MS) and Spinal Muscular Atrophy (SMA).
We appreciate your support :)
We appreciate your support :)